"We are grateful that today is over"

That is a short segment from Mark's prayer tonight. It pretty much sums up what today was like. Today was one of those reality days, when you realize that he really is sick, and this really isn't a walk in the park. It was rough. We spent the entire day getting chemo. 9:30-6:30 straight, no breaks. Mark is very sensitive to the first drug, Rituxan. They have to infuse it very slowly, that was compounded by the fact we were having complications from his "back poke." As time goes on, this process will get shorter. Mark started the day with the lumbar puncture, and it didn't go so well. It took two tries before it worked. The spaces in between his vertebrae are small, so it made the process difficult. Next time, the best area for access will be mapped a little better so it won't be as bad. It hurt him today, I thought he was going to pass out on me. He hung in there, but later developed a spinal headache that was severe. Since the odds of getting a spinal headache from the lumbar aren't good, they weren't sure if it was the Rituxan causing the headache, so they slowed it down, even stopped it for awhile. Our nurse told us this is the first time in ten years she has seen someone in his scenario get a spinal headache. That Mark, he seems to be drawing all the lucky cards this week. He spent most of the day completely flat, it was the only way to relieve his head.  We had an incredible nurse who made our many hours very comfortable. We love our medical staff! Even the ones with large harpoon needles. Our highlight of the day? We made it into the cool kids club. Dr Hancock teased us about our lack of acceptance initially, but we kept our heads held high. We are in! Mark and I are loving our new Ironman bracelets.

Despite all the drama, his appetite was still raging and he ate more calories than any human should probably ingest in one day. He has only gained 4 lbs back of the 10 lbs he lost. Shocking really, considering his new diet. I am sure it will start showing up here soon. If not, life really isn't fair. I wouldn't mind eating that way once in awhile! The night ended with a bang as he pulled out a few clumps of hair. It is only a matter of time. Mark was in good spirits throughout it all, especially tonight. His headache lightened up and he was able to sit and visit with his good friend all evening. They were still up and having a good time when I got home late. All in all, we really are grateful that today is over. 2 cycles down, 6 to go.

Mark pre-headache

Mark mid-headache