I have spent basically every waking moment in Mark's room. At night, I go home, shower, feed the dog, and gear up for another day at the hospital. Tonight, when I came back, this is what I found. Mark peacefully sleeping. He is currently on his last chemo med and hopefully will stay this peaceful throughout the night. It is currently midnight, and has been a long day. It is crazy to think those tubes are delivering poison that will shrink his tumor to half its size, possibly by tomorrow. Go poison go!
I used the few seconds of downtime at home to check my Facebook. I knew it would be bombarded, we have had so many people call and text us at the hospital. (On a side note, whoever shoveled snow at my house is my current hero, it was nice not to have to trek through the snow late at night to get my mail, and to get into my house, bless you!) We are so grateful for everyones thoughts and prayers. We can feel them and are relying on them. Honestly, it is the most comforting feeling to know we are not alone in this. I have to give a shoutout to Ironman Jace and his family. After reading his blog for months, it has always been fresh on my mind. Especially now. Through these crazy days that wonderful blog has answered questions, led to questions, and helped us find comfort. I feel like it has perfectly described my many different feelings and helped me formulate them into words. I have reflected on it often. It is my current Bible:) This has happened so fast and has been incredibly overwhelming and life changing. Because of this, I recognize that many of you have questions and are wondering how and when this all happened. I feel like I owe it to all of you to let you in on the situation. If you are hoping for this to be as well written as some other blogs, you might be slighly dissapointed. You can blame my high school English teacher;) My last post was quite brief and in the moment. At that time we really did not know much. The picture is much better at this point.
I suppose the beginning is the best place to start. Mark has not felt quite right for about 2 months. December was a rough month, he started off the Christmas season with ACL surgery. Shortly following the surgery, he began to get a nagging cough and cold symptoms. He wasn't sleeping well and felt fatigued frequently. We contributed this to his recent surgery and cold and flu season. I got a little impatient with him at times because he seemed to complain of every symptom he could think of. He had an itching bout with no rash, chest congestion, sinus congestion, arm pain, calf pain, back pain, rib pain, night sweats and yadda yadda. Nothing seemed to be consistent and symptoms would come and go. As soon as he felt like he was turning a corner, the "cold" would sit in again. He finally went to the doctor and received an antibiotic. It didn't make any difference. A week later, he and I went in for our adoption physicals. He once again asked for a different antibiotic and something to help him sleep. Another week went by and his chest and head congestion got much worse. Last Saturday and Sunday, his breathing started to become labored and shallow. He got up early and went to physical therapy for his knee and came home exhausted. He put in a few hours of work and came home wheezing. We knew at that point whatever "cold" he had decided to settle in his chest and we were worried about pneumonia.
Tuesday morning, Mark made an appointment to go see the doctor yet again. They took a chest xray and it was pretty obvious he had pneumonia. He came home with a new antibiotic and some breathing treatments. The doctor told him that they would make a difference right away, but if he lost strength to come back quickly. Wednesday, Mark started to complain of back and chest pain. He felt better Wednesday night and asked for a priesthood blessing so that he could finally turn the corner and get back to work Thursday or Friday. About 4 that morning, Mark woke up and told me it felt like a cinderblock was sitting on his chest. I asked him if it was new, and he said no. He told me to go back to sleep and he would be fine. At 9, I called the doctor and left a message to see if this was normal, maybe the pneumonia was working its way out. When we didn't hear back right away, I decided it would be easier just to make an appointment. The doctor wasn't in, but the PA could see us at 11. The PA took a look at the xray taken Tuesday before he visited with us. He had a fresh look without knowing any of Mark's complaints or symptoms. When he came in, he told us that we would definitely need a CT scan because the xray didn't look quite right. We rushed straight to the hospital, did the scan, and were sent immediately back down to the medical center. Mark said the xray tech had a look in her eyes that suggested something wasn't quite normal. He said he felt at that moment, this might not be just a bad case of pneumonia.
After waiting what seemed like forever, the PA came in and said, "Well Mark you have a mass in your chest. It is about 14 cm x 10 cm." At that point, Mark and I both gasped. I started to cry, Mark followed pretty close behind. It felt like a bad joke or a bad dream. That seemed massive to me. The PA started to throw around words like chemo, oncology, and biopsy. He signed admit papers and we rushed back to the hospital. I dropped Mark off and went to park the car. I made a few calls to family and friends to let them know. When I got inside, Mark was already back getting blood drawn. They did the biopsy right away. The radiologist came in and showed us the CT scan and we became very scared. It was massive and wrapped around his airway, esophagus, major blood vessels, and into his lungs. It was blocking the vessels from getting blood to his lungs (hence the pneumonia) and to his head (hence the severe head congestion). There were a few nodules in his lungs, so despite the fact we did not have biopsy results yet, it was pretty obvious it was lymphoma, we just didn't know what kind.
We have been furiously working on our adoption papers for a few weeks. Since I was home with Mark all this week, I had gotten quite a big chunk of it done. We had worked on it all day Wednesday and were excited about the prospect of getting a baby in the near future. We were excited after a few failed fertility things. We were very optimistic. How quickly our future changed. In less than 24 hrs, we knew we were facing months of chemo and who knows what else. Everytime a baby is born at the hospital, they play a song and it reminds me that that will not be us for awhile. Dumb song. We waited a few hours before we were able to talk to the oncologist. Those were an awful few hours. We were trying to figure out how they were going to surgically remove a ginormous tumor that was literally "hugging" so many important things. Once the oncologist explained that it would not be removed, but shrunk by chemo, things looked a little more optimistic. Dr. Hancock explained things so well and gave us a roadmap without knowing exactly what kind of lymphoma we were facing. We came out of that meeting feeling very positive and optimistic. The faster growing the tumor was, the faster it would respond to treatment. We figured that with the size, that it was definitely fast growing. Early Thursday I was trying to decide whether or not to play in a bowling league and in my soccer game that night. I thought I would be able to make the late game. Thursday morning and Thursday night were two different worlds.
Today, Friday, Mark started the day with preop questions and tests. He had an ultrasound of his heart and neck area to see if there was anything going on, more nodes, or the tumor affecting his heart. He had surgery at 11:30 to place a port, draw spinal fluid, and take a bone marrow biopsy. At 2 we learned from Dr Hancock that the pathology from Thursday's tumor biopsy was back. Mark officially has a form of NHL known as Diffuse Large B-Cell Lymphoma. From what we are told, if you have to have cancer, this isn't a bad one to have. It responds well to treatment. The spinal fluid came back with no cells which is good. The bone marrow results will come tomorrow. He started response based treatment, beginning with the first of three cycles of chemo. They also did a CT scan of his abdomen with contrast to see if there is any evidence of nodes in his abdomen. We feel like we caught this pretty quick. He is "lucky" it was affecting his airway and caused pneumonia, if it were in his abdomen he might not have had an onset of symptoms and would not have found it as soon. If we would have waited a few more days or a week, he risked the chance of having a stroke since the tumor was affeting blood flow. Finding a good artery for the port proved to be a small challenge since some of his arteries were completely blocked off. They did some "electrical" fishing to get the line squared away correctly.
Dr Hancock was great to spend a lot of time with us explaining the drug cocktail Mark will receive and its side affects. It won't be easy and it won't be fun. He should begin to feel better initially as the medicine will shrink the tumor very quickly, as soon as tomorrow. This will help him breathe and relieve the pressure and pain in his chest. Since it is response based, duration will be based on how well he does. He will probably have radiation therapy once the chemo is done. He will be given meds to counteract the chemo meds. With these, we hope that he feels good enough to get back to work soon and back to our "new" normal life, as was eloquently described by a post on Jace's blog.
Despite the shock and awe of the last two days (which seemed to have gone so fast, but seem so long, our old life seems like a memory), we have been so blessed. We have felt the power of the priesthood through blessing of worthy holders. Mark is a trooper and his spirits are good. He says he has been very calm since a blessing givin by his dad. Dr. Hancock also helped to calm us down. At least now there is a game plan and it has already started. I am doing ok. I have been freaking out and worrying about things that probably don't matter and will come with time. I am learning to take things an hour at a time. I can't put into words how grateful we are to all of you who have sent wishes. It makes me wish I was more vocal when I heard others struggling. I felt concern prayed, but never told them I was. We are buoyed up by the bombardment of support. We feel so blessed for competant doctors who are amazingly caring. We have had many visitors and appreciate them! We have a lot of thank you's to give and if we have missed some of you, we don't mean to. It is hard to keep up with it all. We live in a wonderful community and are blessed with wonderful family and friends. Thank you all! We love and appreciate you more than you know! I want to especially thank the many doctors that have showed concern and have taken to the time out of their busy days to come and check on us, spend time with us, comfort us, and answer questions. The nurses and other hosptal staff have been equally as great and are taking incredible care of us. Those nurses will always have a special place in our hearts. Mark even received a valentine from some mystery kid name Rhett. The small pack of Skittles were a huge blessing. They kept the nasty taste from the chemo drugs at bay. Thank you Rhett! Mark's first official craving...Skittles. I went to Maverick to buy some at 11:30. The lady kind of looked at me funny when I told her that it was all I needed. I told her I just really needed a late night Skittle fix:)
Tomorrow we will get results from the bone marrow biopsy and the CT scan. He will get to go home hopefully sometime Saturday afternoon. I am nervous to be the care giver. It has been nice to let the nurses do it and just be an emotionally supporter (or wreck depending on the moment). Tonight, we are grateful for a loving Heavenly Father, a Savior who atoned for not only sin, but all pain and suffering. We are grateful for doctors, nurses, and modern medicine. We are grateful for Mark's great job, bosses, co-workers, and insurance. We are grateful for nearby families and their incredible support. We are grateful for friends and those of you coming out of the woodwork. We are grateful for mission presidents, stake presidents, our bishop, and ward family. We are grateful for Skittles and valentines. I am grateful for the internet and social networking. It is so much easier than trying to text and man two phones! I am grateful for snow removal, a dog who somehow understood I was a little down, and a little boy's blog that prepared me for the scariest day of my life!
